Tuesday, May 20, 2008

The Lymphedema Clinic Visit...

Hello Everyone:

Boy what a day for Sue and I, up very early and off to the Memorial Hermann Medical complex in downtown Houston. We got checked in pretty promptly to the Lymphedema clinic, then they send a person who takes you to the area you are going as no one could possibly find it in the maze of hallways elevators skyways left turns right turns ramps that go up ramps that go down, it is amazing.Thank goodness we got a wheel chair for Sue right off the front door, anyway we got to the Lymphedema area and waited just a few minutes and were ushered in a Dr.examining room. A male nurse Terry came in and got on the computer and asked Sue a lot of questions about her health, he took her temp and blood pressure also and a picture of Sue which is attached to her file so there can be no mistake on who they are treating. Terry left the room and said Dr. Maus (mouse) will be in shortly, and sure enough The Dr. came in, a very nice and qualified Dr. who examined Sue and explained all about lymphedema to us and how it is treated. He then asked Sue if she had any questions and Sue told him about the shortness of breath situation. Dr. Maus examined Sue and took quite some time listening to her breathing, he said he would be surprised if the fluid was from the lymphedema on her lungs as that does not occur from lymphedema. He thought it could be a tumor, or fluid created from cancer cells, he recomended that she have xrays of her lungs.

He also is sending us to a clinic closer to where we live to treat her arm, shoulder and hand. She will have her arm wrapped 24-7 for up to three weeks plus massage therapy three times a week.. The trip to the xray clinic was quite a long journey, as we had to go through another huge building and then across the street and up to the 16th floor. If this tiring you out reading this, imagine how Sue felt, what a trooper this gal is! She has more courage and I love her so and am so humbled by it. Anyway we had the xrays and Dr.Maus had called Sue shortly after to check up that all went well and he would call us as soon as he had any info. We got home and Dr. Maus called and spoke to Sue, he had looked at the xrays himself and wanted Sue to know that he believed that it was fluid from the cancer, but he was waiting for the radiologist to see them. He also had called Dr Nguyen and discussed this issue with him and Dr. Nguyen was to call Sue as soon as he got the info from the radiologist. So far no word.

I may have left some things out, but that is the best info I can give you off the top my head, which is exteremly tired. Tomorrow God willing we will start a new and wonderful day, a day that my couragous daughter Sue will be stronger and breath better even a little better is God's blessing. Doug

7 comments:

Anonymous said...

I am so glad you were able to see a specialist yesterday. It sounds like you had a long, tiring day, but I am happy to hear there is a closer clinic for the weekly visits. I am praying for quick, accurate xray results and a plan!

Love you,
KT

Koo-Koo said...

It is very encouraging to know they have made the determination from the xrays and hopefully you will hear something today from Dr. Nguyen.

I am praying that the wrap they provide you with will help your lymphedema and that you regain total use of your right hand and arm.

Thanks for the great blog Dad.

Anonymous said...

Our prayers are with you Susie- God is with you and your family.LOVE,Aunt Karen @ Uncle Mike

Anonymous said...

We continue to pray for accuracy in all the testings, wisdom for the Dr.'s as they treat you Sue, and for His peace and comfort to surround you. Hope the sleeve for your lymphedema works well for you so you will be able to use it again. Thanks Doug for the great blog and for being there for Sue. I know it means a lot to her that you are there for her. So nice that you and Kay can share taking care of Sue. You all are in our prayers and thoughts. Hope tomorrow goes well for you and that the chemo does its job with no side affects. Know you are loved.

Pat

Taunter said...

Praying for effortless breathing and disappearing lymphedema!!

Thinking about you all day long - and praying each I do! :)

Love,

Deb (Taunter)

Anonymous said...

Thanks for the update Doug! Sue, "Hats off to You!" What strength you showed today. What a blessing God has both your mom & dad around you! He is good!!!
With love,
Lisa

Anonymous said...

Oh Little Susie, such a long day you had on Tuesday but sounds like a great deal was learned too. Keep the faith kiddo you're making progress. Thanks for the blog Sonny - you rock! Hope you all have a great day today. You're all in my thoughts and prayers daily. Love you,
G